Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders
de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Warnink-Kavelaars, Jessica; van Rossum, Marion A.; Bosman, Diederik; Menke, Leonie A.; Malfait, Fransiska; de Boer, Rosa (Urban Vitality); Oosterlaan, Jaap; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies
Physical activity and physical fitness in children with heritable connective tissue disorders
de Koning, Lisanne (Urban Vitality); Warnink-Kavelaars, Jessica; van Rossum, Marion; Limmen, Selina; Van der Looven, Ruth; Muiño-Mosquera, Laura; van der Hulst, Annelies; Oosterlaan, Jaap; Rombaut, Lies; Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten)
Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health
Warnink-Kavelaars, Jessica; de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Menke, Leonie A.; Alsem, Mattijs W.; van Oers, Hedy A.; Buizer, Annemieke I.; Engelbert, Raoul H. H. (Urban Vitality); Oosterlaan, Jaap
Heritable connective tissue disorders in childhood
Warnink-Kavelaars, Jessica; de Koning, Lisanne E (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies; Alsem, Mattijs W; Menke, Leonie A; Oosterlaan, Jaap; Buizer, Annemieke I; Engelbert, Raoul H H (Urban Vitality); On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group
Parenting a child with Marfan syndrome
Warnink-Kavelaars, Jessica; van Oers, Hedy A.; Haverman, Lotte; Buizer, Annemieke I.; Alsem, Mattijs W.; Engelbert, Raoul H. H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Menke, Leonie A.
Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs
Warnink-Kavelaars, Jessica; Beelen, Anita; Goedhart, Tine M. H. J.; de Koning, Lisanne E. (Urban Vitality); Nollet, Frans; Alsem, Mattijs W.; Menke, Leonie A.; Engelbert, Raoul H. H. (Urban Vitality)
Marfan syndrome in adolescents: perspectives on restrictions in daily functioning and participation - barriers, facilitators and support needs
Warnink-Kavelaars, J; Beelen, A; Goedhart, T; Nollet, F; Alsem, M; Menke, L; Engelbert, R (Urban Vitality)
Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study
Warnink-Kavelaars, Jessica; Beelen, Anita; Dekker, Sarah; Nollet, Frans; Menke, Leonie A.; Engelbert, Raoul H.H.
Children and adolescents with Marfan Syndrome
de Koning, Lisanne; Warnink, Jessica; Scheper, Mark; de Vries, Janneke; Menke, Leonie; Rombaut, Lies; Engelbert, Raoul
Chronic pain in hypermobility syndrome and Ehlers–Danlos syndrome (hypermobility type): it is a challenge
M.C. Scheper; J.E. de Vries; J. Verbunt; R.H. Engelbert