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Reconsidering democracy. History of the Human Genome Project.

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Reconsidering democracy. History of the Human Genome Project.

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Samenvatting

What options are open for people—citizens, politicians, and other nonscientists—to become actively involved in and anticipate new directions in the life sciences? In addressing this question, this article focuses on the start of the Human Genome Project (1985-1990). By contrasting various models of democracy (liberal, republican, deliberative), I examine the democratic potential the models provide for citizens' involvement in setting priorities and funding patterns related to big science projects. To enhance the democratizing of big science projects and give citizens opportunities to reflect, anticipate, and negotiate on newdirections in science and technology at a global level, liberal democracy with its national scope and representative structure does not suffice. Although republican (communicative) and deliberative (associative) democracy models meet the need for greater citizen involvement, the ways to achieve the ideal at a global level still remain to be developed.

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OrganisatieDe Haagse Hogeschool
LectoraatLectoraat Filosofie en Beroepspraktijk
Gepubliceerd inScience Communication Sage Publications, Vol. 28, Uitgave: 2, Pagina's: 479-502
Jaar2003
TypeArtikel
ISSN1075-5470
TaalEngels

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